The Rise & Fall of Weight Gain On Prednisone
Ten weeks ago I was put on prednisone to treat a relapse of nephrotic syndrome. Ten weeks ago I weighed about 145 pounds (I’m 5′ 2″) and was lamenting (whining?) about how hard it was to lose those last five lousy pounds.
How I long for those days. Since being on the prednisone I have gained close to twenty pounds. That’s up two dress sizes in two months. I am not here to bitch and moan, although it kind of looks like I am. I would not insult you like that! Many, many people have much worse health problems than I do and more difficult weight issues than I do. It’s not the degree that’s important. It’s that we all have more in common in our pain and discomfort than not.
On another day I will write about how we reflect on our own story in comparison with other’s, the good and the bad about it, when doing so uplifts us and when it only makes us feel worse. But that’s not for today.
Today is for anyone out there who not only struggles with weight, but struggles with weight on medication that tries its hardest to make you pack the pounds.
Because how we look does make a difference in our self-esteem. As much as I sincerely love and try to practice the “I love the inner me” message, I also like how I looked and felt in a size 8 pencil skirt.
On another day I will write about acceptance. Meaning, there’s been a shitload of ‘nothing I can about it so I better learn live with it in serenity ’cause getting mad just makes it all worse.’ But that’s not for today, either.
Today is meant to inspire us to do what we can to stay in control when the weight-gain undertow is pulling us out to sea.
As much as we hate prednisone, we are grateful for it. We take prednisone for the treatment of inflammation, asthma, arthritis of all kinds, inflammatory bowel disease, sarcoidodis, lupus, kidney disease, skin problems, allergies and more. Without it we would be dealing with a heck of a lot more discomfort than extra poundage.
But the extra pounds are no joke. They are a pain in the self-esteem and when the weight sky rockets, as it can, adding up to 50-60 pounds overweight and more, well, then the weight itself can cause health problems. Talk about vicious circles!
Why does this have to happen?
Prednisone creates the perfect storm of weight gain. It comes at you from four fronts: 1. It slows your metabolism and changes how you process glucose. Avoid sugar. Boo! 2. Fluid retention happens. Avoid salt. Boo! 3. Fatty tissue is redistributed to where, I swear to God, it makes you feel as bad as possible: face (moonface), upper back (buffalo hump) and abdomen. Charming! 4. Makes you hungry all the time for anything in your path. Nothing edible is safe in the sites of a prednisone packing mama!
5 Things We Can Do About Weight Gain When Taking Prednisone
What can we do about the weight gain? Here is my plan. So far it’s worked for me. In my heart I know I could have gained a hell of a lot more at this point. I’ve been working hard to just keep the madness down to the occasional Oreo orgy.
1. Start with patient maintenance. This is a most important thing. If your on a high dose of prednisone don’t stress yourself out trying to lose weight. You are taking the stuff because you are sick so pay attention to that. See your doctor, follow directions, take the damn tests, blah, blah, blah… and when you can, pamper yourself. Let others pamper you too.
The best you can do when you are in the higher doses is to keep a food journal just to maintain and keep the habit. Just by writing down what goes into your mouth you subconsciously reduce the amount you eat, even a little. Besides, you will need this habit later so may as well start now if you’ve never done it before. Be honest, which can be hard when what you ate in one day could feed a whole colony of hungry hungry hippos.
2. Choose your food thoughtfully. Avoid salt and simple carbs. Embrace fruits and vegetables. Not only are these foods lower calorie tummy fillers, they are packed with antioxidants, nature’s own anti-inflammatory. When my appetite was at its most wicked worst I binged on stuff like French fries, sure, but there were also occasions when I binged on fruit. Weird but true.
3. Exercise. If you can, if your illness allows it, try to move every day. Twenty minutes to half an hour of some kind of exercise will keep your metabolism revved up and keep your muscles from going to mush. I find mixing up activities, from walking, riding my stationary bike, yoga, weight training keeps me from getting bored. And I’m lucky; my body likes it. You may need to talk with your doctor about this. You may need a physical therapist to recommend a routine. Don’t let this hurdle stop you, though, please. Also don’t do aerobic exercise in the evening. You need your rest.
4. Plan meals, plan snacks, plan mini-meals, whatever your style is – Plan It! The more you plan ahead, and shop accordingly, the less apt you are to succumb to gotcha! eating. Do not have a bag of sea-salted, kettle-fried chips in the cupboard! I do not care how many teenagers are in the house insisting they need this basic food group.
5. Count calories Phase 2. As the dosage is tapered down you will begin to feel more in control of your appetite. Start lowering your calorie budget a little at a time. The app on my iPhone called Lose It! lets me adjust my calorie budget so that I don’t stress myself out restricting my calories beyond what I can realistically manage. My Fitness Pal and Sparks People have similar programs.
The good news is that at the lower doses the insanity of the worst side effects ease their grip. The thing I find the most challenging is to believe that this is temporary. The weight-loss I fought so hard for over the last two years is my permanent, natural place to be. It may take several months, it might be years, but I can’t wait to be whining about those extra five pounds again.
What about you? Have you been dealing with the side effects of prednisone? Have you had any success managing your weight on it? Perhaps you have a completely different perspective. Please share your thoughts.
I can sympathize, I felt this way when I took Paxil. I remember waking up at 2 a.m. to eat because I was RAVENOUS. I also know what you mean about the chips…I recently vowed to stop buying fatty snack foods because, if they’re here, I’ll eat them!
Thank you, Maria! I hope you are doing well these days. I feel badly it’s taken me so long to reply to your comment because I really appreciated it!
Chips of any kind, brownies and ice cream… can’t have them in the house whether I’m on or off the prednisone! 🙂
Thank you so much for your article. I was also 135 lbs before prednisone and gained 25 lbs. It hurt my self-esteem but the worst is feeling unable to come back to my real “me” for years! I am still fighting and is helpful to know I’m not the only one. Thanks will all my heart. 🙂
I’ve been on prednisone for about 4 years now. Before prednisone I was about 140 lbs(still a bit overweight for my height age). I’ve since gained about 65 lbs now at 205 lbs (I’m only 5’3″ imagine). I look and feel gross. I’ve tried all kinds of diet plans and exercises. One particular issue I have to deal with is limited funds (I’m a grad student right now). So I’m in really annoying situation right now. I am scouring the web to see if anything that helps that won’t cost me an arm and a leg. Only thing I have found that should help is the sugar and sodium thing.
I too am of short stature (5’3″) and when I was first diagnosed with Rheumatoid Arthritis I lost 30 pounds in 3 months because I was so fatigued and in so much pain that I couldn’t/didn’t want to do anything. As soon as I started taking prednisone my weight started increasing but wasn’t that noticeable. That was 3 years ago… To this day I have gained the 30 pounds I lost and then some and I am the most uncomfortable I have ever been. I wasn’t in great shape when I first lost the 30 pounds and I was happy that I did lose it but I would have much rather lost it by dieting and exercising and then kept it off!
My RA symptoms are under control now and I have decreased the dosage of prednisone from 5mg two times a day to 2.5mg every 2 days, sometimes I can even go 3.. I have started adding exercise into my routine but only twice a week and I have been eating gluten free for the last 3 months but still haven’t lost any weight.
Do you have any recommendations?
I know it’s been a while and I’m sorry I haven’t responded right away. If your situation is still going on please give me an update. For the last two years the dosage of the prednisone I take has gone down then up again and down as my condition gets better and then relapses. As I write this I’ve been prednisone-free for a few weeks (knock on wood!).
This is what I’ve done for the last year:
I engaged the services of a certified nutritionist. Checking in with her now and then, even when I can’t actively lose weight, has been a way of keeping myself honest when it comes to eating as responsibly as I can given the situation. My nutritionist is compassionate and totally understanding of the challenges of maintaining weight on prednisone. She didn’t push me or yell at me if I needed to just chill about the whole thing. In fact she encouraged me not to be so hard on myself.
When the prednisone dose was high and I was too depressed or my energy was limited and I had to prioritize other things like my work and family, I didn’t sweat it. If I really wanted seconds of ice cream I went ahead and let myself have it and enjoy it! When I could resist it I allowed myself to do that too.
When the dose of prednisone got low enough, and I was ready psychologically, I started journaling my food intake. I use an iPhone app, Lose It!, to journal what I eat. I find it very helpful and even kind of fun, like a game. At first I journaled just to journal. Now that I’m ready I journal to keep within a calorie budget that is reasonable for responsible weight loss.
I don’t deprive myself of anything. I understand why people want to go gluten-free and/or lower carbs. If you can do it my hat is off to you. I’m more of a moderation is all things kind of girl, with an emphasis on fruits and vegetables.
With my nutritionist’s and my doctor’s encouragement, I have upped my activity, too. I walk much more, added yoga to the mix with occasional free weight use. This winter was particularly brutal on the activity side of things. I’m looking forward to walking outside more.
So far, after doing this for four weeks, I’ve only lost one pound! That is frustrating but my nutritionist and my husband, who is a microbiologist, say that my body is probably trying to hold onto the extra prednisone fat because it thinks that’s the new normal, my current set point. If I want to lose weight, it could mean many more weeks of sticking to my calorie budget and remaining active despite the lack of encouragement from the scale.
To be honest, even though the scale is a bitch, I do feel better in my body. It’s a small shift, but I can feel it and it feels good.
I hope this is helpful to you.
I have been on prednisone now for 3 months, with a dose as high as 60mg. Right now I am at 40mg. I am doing two things which seem to help me kep from gaining weight. First, I skip a day of prednisone every five days. Second, I am eating low, low carb. If you don’t provide glucose, your body can’t change how it processes glucose. I am on the low carb web-site and others have had good results with this approach. Currently I am trying to keep my carbs less than 10 a day. This is only temporary to persuade my body into ketosis. I lost the 10 lbs. I gained before I started this routine. I try to walk everyday. Once my body has adjusted, I will up my carbs a little each week until I reach a point where my weight is stable. Check out low car friends forum.
Hi, Teri, Does the low carb regimen still work for you? I’d love to have an update.
Thank you for this posting. Though it is from a few years ago now it is what I needed to read. I am on a daily dose of 75mg for major inflammation from severe allergies. I guess this is a reminder that I need to just focus on getting better and watching what I eat. Not looking at my weight all the time – easier said than done though!
Yes, this article was written while ago but I am just now getting off the prednisone after being on it for over two years. By balancing being kind to myself, not sweating the weight thing too much, with eating as responsibly as I could and not forgetting to move when I could, I was able to keep my weight gain to the 20 pounds I mentioned in the article. You are on a very high dose, so weight gain is only one of many challenges for you! Take care of yourself! I am so glad the article was a help and I wish you the very best!
Just found your article on the net although it appeared some time ago, and thought it was very interesting and humorous. I am down to 2.5 of pred. for the next 3 months for my PMR. Hoping the weight gain at this dose will ease off a little. I’ve put on about 10lbs but because I am only 5′ it really shows!
Just found this site today, so wished I could right like you funny.
I was on a daily dose of 120mg for almost 10 years. I was 32 at the I was put on prednisone for asthma. Weight gain was only one of many side effects I have had. I still have to be on this drug ever now and then and each time it is very hard to watch the changes my body goes through. I have never lost all the weight I gained, but I work at each day. I too use Lose-it app and find it very helpful in the fight. Right now I am stepping down to 10mg tomorrow and am hoping some of the side effect will start to go away.
I will say this about the weight gain. I am a live, I have turned into a very good healthy cook. I workout doing something everyday. If I slip and have a little more than I should I start a new the very next meal.
Wish good health
I have an autoimmune hemolytic anemia and I was put on 250 ml of prednisone for 3 years when i was 32 years old. I had a central line that was feeding me liquid form for 1 year and then took it orally for 2 years. with a whole other medication. I gained 150 pounds in those three years. I was 5’7 and 160 pounds and now I am 5’4 and 314 pounds. They had to remove my spleen so now I have no immune system. I’m happy to be alive but it is very hard to loose all this weight. I’m not on any medication any more I have been off for over 6 years now, tried every diet there is but can’t seem to loose the weight. I don’t eat a lot to begin with. 3 small meals a day and lots of water. I swim now that the weather is warmer. All I can do is accept that my body will never be what it used to be. Just keep eating healthy and try and move as much as possible. If anyone knows how to get rid of all this fat that would be great!
Wishing everyone good health!
I just recently found this article. My husband finished his treatment for nephrotic syndrome in March of last year. He gained approximately 50-70 pounds from the treatment and has yet to lose them. He will lose 6 pounds one day and gain it back the next. It is a constant roller coaster with no real change. He is using the Lose it app and recording everything and eats 2200 calories or less a day (he would have to eat 3500 a day to maintain his current weight). Even with this and walking, golfing and strength training, not much is happening. I am at a loss as how to help, outside of healthy eating. Any suggestions would be welcome. Thanks!
Thanks for this! I stumbled across this while looking for re-assurance and maybe some advice on how to tame the prednisone beast! I started taking it March of this year for inflammation around my heart. I was able to finally come off it in July, but got sick again so I’m back on it now. The first round I was diligent on food intake and exercise, and only managed to gain 5 lbs. This time, however, I have not been so lucky. I am not allowed to exercise anymore, and it has been harder to control my appetite. I am doing a slow ween and am finally down to 7.5mg, but still have many months to go before I’m completely off. I have gained about 20 lbs (I stopped weighing myself a month ago because it made me more depressed than I already am).
I am so very thankful that I am alive and somewhat healthy. Sometimes I read peoples’ stories and feel bad for feeling down on myself. I’m just trying to make it through this round of steroids without losing my mind or another pair of jeans. I was promised that I wouldn’t be put back on them if I got sick again so that I am very thankful for. less than a year ago I was told I was an hour away from being dead, and if I did make it through, I would need a heart transplant. I am alive with MY heart, so I have SO much to be thankful for…. But it is still so hard trying to button my pants everyday.
Anyway, thanks again for this! I will be going back to it for the advice and the feel-good humor.
I know this is an older article. I wanted to thank you for it and all the comments. They are very helpful and reassuring. I have been on prednisone for 1 year continuously and several years before as ‘bursts’ to treat flares. I range between 60 mg clear down 2.5 mg but have settled in at around 10 mg a day. I have put on 30 pounds this last year. I am happy that my symptoms of my disease are being more controlled but I can’t even recognize myself in the mirror now. I am trying to be kind to myself and stay positive. It’s a lot harder then I imagined, I hate seeing people who haven’t seen me in a while. The people who have watched my body transform to this round soft state, but don’t know me well enough to know I am treating an illness, become my biggest obstacle. I want to shout “I’ve been on high doses of prednisone, it’s not my fault I am fat and crazy”. As summer is coming I have dread, none of my summer clothes come close to fitting me and my body is out of shape, swollen and mushy. I have no confidence to show any part of my skin. I pray for rain and days in long shirts and hoodies. It’s easy to think you can accept the way you look, as long as you are healthier, it’s very hard in practice. There is good in my journey too. I am kinder and have less judgment of others. I am stronger in my faith. I love my children, husband and my family more! I didn’t even know it was possible. My love for them help me accept the things I cannot change. I know my road could be worse. It is helpful to read this and know I am not just shallow in missing my old body, but the loss is real. I am working to accept my new road and my new body, I am not giving up on being at a healthy weight, but understanding my body is different now.
This year as been terrible for me for constant flair ups of my asthma, as a result back to back steroids all year which as as result caused me to gain a lot of weight especially a moon face. And it’s really really getting me down. How can I lose this extra time weight.
I am with you there. I am now so paranoid about my asthma going out of control! Even though it’s controlled regularly through medication, this last year has been the worst! I’ve put on a whole 23 pounds since February from having to take prednisone so often. It’s like this weird catch 22. I try to work out to get this weight off, but my lung capacity just tires me out. It’s just nuts!
Thank you for this article . I have polymyalgia and am on prednisone, and have been for 8 months. I look like I have swallowed a balloon, and my stomach is so distended as well as my cheekbones. I am five foot one. Soon I shall be like a walking pudding, unless my efforts at curbing the appetite works. My report from my heart specialist mentions “signs of obesity” and so I am mortified. I manage a gentle exercise class twice a week, and walk (it’s amazing how much shopping helps with that) even with pain. I hope to survive without more complications. Keep up the good work everyone. I heard today of someone who is off prednisone and is now far too thin!!
Just found this, I have ulcerative colitis and the past 3 yrs have been hell. Been on all kinds of med, infusions, now on humira, petrified to gain weight it is putting my stress on me. I am on low residue diet which includes only white carbs. Veg, fruits not allowed now. Dr. Wants to put me on On 40 mg prednisone and ween me off every week. Some one please help me. Would love your thoughts. My email is email@example.com
I have been on prednisone 120mg QOD for a kidney disorder since May. I am finally starting to taper down.(on 40mg QOD)I’ve gained 30 pounds and I’m afraid that it won’t come off. The pain from the weight gain is hindering from exercising. Any suggestions?
I keep searching for things about weight loss on prednisone. I am 5’0 and last time I was weighed (in October) I was 157 pounds. I have arthritis (at 16!) and am currently on 30mg. I had lost 10 pounds from the arthritis and then gained over 20 pounds once on the meds. I probably weigh more now, I have the moon face and I hate it! I am currently also taking actemra(injections) and my doctor told me to start taking 5mg less of prednisone once I’ve been on the injections for a month (because I had a bad reaction last time I tried to lean off without the injections, he’s hoping it’ll cancel it out) which’ll be next week. I’m extremely impatient and just want my old weight back. I look at pics from 6 months ago and I’m so mad that I didn’t appreciate it more. All I read is that losing the prednisone weight is impossible and people barely lose anything once they get off. I’ve even read that you don’t lose face fat until your under 10mg. Did anyone start off at 30mg and then lose the weight once they started slowly coming off? Any pointers?
Also, it’s even worse because I don’t have an excessive appetite or get that hungry, yet I’m still gaining like crazy.
That’s absolutely the worst. And so true. So often the best I could do when on prednisone was keep the the weight gain at a trot instead of full on gallop!
Hi, Melissa, I’d like to hear what others have experienced. For myself, once I started tapering I at least wasn’t gaining weight any more, but I had to be completely off the prednisone and off for a few weeks before I felt any weight come off. It always took much longer to lose the weight than it did to gain it. Totally not fair! One time I was able to get off the prednisone. I consulted with a nutritionist to help me lose the weight. We made progress with a sensible, balanced diet that (finally!) I could control.
I finished an 8 week course of prednisone (tapered from 40mg) about 2 weeks ago and haven’t noticed any change in my body yet. How long after stopping did u realise a difference ?
Hi, Sophia, I’m going to take guess that what you mean by “realize a difference” is “when will I lose the extra prednisone weight”? I’m not a medical doctor so please understand that I can only speak from my own personal experience. The moon face and other changes that were brought on by the prednisone took longer to resolve that they did to appear in the first place. I know that isn’t fair but it’s how it is. You can help things along by smart eating, drinking plenty of water, avoiding salt and exercising a big dose of patience. At some point, you will look in the mirror and see yourself again.
Starting a 60mg dose of prednisone for low platelets during pregnancy. I’m 34 weeks so the longest I’ll be on it (if it works) is 6 weeks (my Dr will take me off after I give birth). Already having gained weight from the pregnancy, I’m terrified of packing on more lbs! With sensible eating and exercise (as much as I can do at this stage) what do you think I should expect as far as weight gain over 6 weeks?! So nervous!!
Your doctor and I want you to relax for your sake as well as baby’s :). And you have reason to relax. The best news is you have a medical professional who is on top of what you and your baby need. Further, you are taking that advice, despite your nerves. Good for you! The second good news is you will not be on the prednisone for very long. By now we’re talking about a few weeks, which may feel like forever, but will fly by. The weight you gain now is in part because your baby is growing and, yes, what the prednisone contributes. But that will come off after you’ve delivered and recovered from delivery. You are doing your best by eating and exercising sensibly. Give yourself a big pat on the back, time and patience. In other words, mother yourself as well your child.
Thank you very much for this post. I was on Prednisone for 2,5 years, starting on 60 mg per day, last 9 months just 5mg. Now i am completely off for 3 weeks and – more likely i have GAINED one pound. Tracking my calories with Lose it! already before the taper, with approximately 1500 calory diet. I cannot eat much less, because i am a kidney patient and we must eat. Also low carb diet is impossible, because i must limit protein in my food. In total i have gained about 26 pounds, would be happy to lose at least half of it, but in this moment seems hopeless. One good thing – my moonface is really going away. Is it possible weight loss is more difficult, if prednisone has lead me into menopause (much too early, but my period stopped one month after starting prednisone)? Best wishes to everyone struggling with the same problems. I
Hi, Eva, Congratulations on tapering off and losing that moonface. Isn’t it nice to see your beautiful smile in the mirror again? It’s way too early for you to feel hopeless, even though I do get it. When menopause is thrown into the prednisone weight-gain mix it can feel pretty unsurmountable. Despite this, your goal of losing half the prednisone weight sounds so reasonable! If you haven’t yet, consider a consult with a registered, qualified dietitian. A good one could help come up with some creative ways to balance the type of nutrition you need to keep your kidneys happy and off prednisone. And you don’t mention exercise. Check in with your doctor. If she/he gives you the green light, look into incorporating some cardio (walking, running, biking) and cross training (lifting weights, using resistance machines), into your daily routine. Sweating a bit might be the magic that helps burn some of that extra prednisone weight.
Thank you so much! My physical activities include quite much walking every day. When i stopped prednisone, i was very weak first 4 weeks, also much pain in arms, shoulders, back, so i started to walk much less, but now i try to get back to my usual 5-10 km pro day. My doctor suggests also pilates. For me fast walking is what truly makes me happy.:). But i shall try to include also pilates in my schedule. Thanks a lot.
Hi, Eva, I’m so glad you’re moving. Walking has been called the ideal exercise! Do what makes you the happiest! Pilates can be a bonus to support your walking. Did you know pilates was created by Dr. Joseph Pilates to help bedridden WWI soldiers recuperate? True story! When I was younger, between relapses, I used to be a runner. That was the exercise that made me happy. In late middle age, after several long episodes on prednisone, I never thought I could run again. After two years off prednisone and dedicated work to strengthen my muscles (and bones) I started ever so slowly, to walk for exercise and stress reduction. Then walk/run again. Then run. I’m not saying you should run, because walking is awesome. I’m saying we should, when we can, do more of what makes us happy.
Hi. Thanks for posting ur experiences and advice. It’s very reassuring to see how others deal with our good bad and evil friend prednisone
I have RA and started taking prednisone to stabilize flare-ups in burst dosages. I ceased using it when I was prescribed methotrexate This worked well for about a year but I continued to have an elevated wbc. After s battery of tests it was determined I have inflammation inlungs probably caused by the RA
I was just prescribed a 40mg per day of prednisone for the next 6 weeks
I experienced no weight gain previously when using it. Since last July I have lost 105 lbs through diet and exercise. My goal is to lose another hundred ( I’m 6feet 4 and weighed 415 lbs. now I m still 6’4” but as of today weigh 310). I workout 5 days a week mostly aerobics .
I have read a person can realize anywhere from a 5lb to 7 lb weight gain for every 10 mg of prednisone u take.
My question is : can weight gain be controlled by strict dietary control ; decrease sodium intake: increase potassium; don’t binge eat; exercise; and finally deal with the side effects that u can’t control. Am I being realistic? Some weight gain might be inevitable and how it is distributed I have no control over.
I just started this regimen a few days ago – so it goes
Thanks for having this forum. Your humor and wit is appreciated.
Hi, Bob! Congratulations on the weight losing over 100 lbs in a healthy manner despite the RA and meds. You are amazing!
To clarify, your question is: Am I being realistic? The thing for which you are asking if you are realistic is: Can weight gain be controlled by strict dietary control; decrease sodium intake: increase potassium; don’t binge eat; exercise; and finally deal with the side effects that u can’t control. Some weight gain might be inevitable and how it is distributed I have no control over.
The keys words here are “weight gain control” with this regimen, while on prednisone. I believe that weight gain control is realistic. I did something similar the last time I was on prednisone for over two years. I still gained weight, but I know in my heart that it would have been much worse if I didn’t try hard to eat right, exercise, drink lots of water, lose the salt, etc. There is something about prednisone, which is a steroid, after all, that changes the metabolism and distributes fat in our face, upper back and belly. So no matter how hard we try we are going to gain weight. It’s human to be discouraged. We all need to remember to be proud and kind to ourselves for doing the best we can under these conditions.
Thank you for posting one of the few reviews of prednisone that doesn’t solely blame the person overeating for the weight gain…prednisone in high enough amounts will put fat on.
I was on a salvage treatment of 250 mgs of prednisone a day, (I know that’s a massive dose, I was given too much chemo) then tapered. But I could tell you that it really didn’t matter what I ate, I could barely eat at [all] as it was. I never over ate—it was impossible for me at the time, but I still gained 30lbs. Thanks to prednidone’s extremely long half life — It took me years of excercise, strength training, cardio, to get that particular prednisone fat distribution off. It was so tough. Cancers gone and I still have a small roll on the belly.
Hi, Diane, You are a Cancer/Prednisone survivor superhero and role model! Your recovery is an inspiring story of hard work and persistence. Thank you for sharing your story with us here. My head nearly exploded imagining being on 250 mg of prednisone for any amount of time! Weight gain is not only one thing we have to deal with at hight doses. That, and everything you went through, had to be a trial by fire. Who cares about a “small roll on the belly”? You are a strong, resilient woman! You are amazing!
Enjoyed finding some kind of solace/understanding. Been on Prednisone nearly 5 yrs for fibromyalgia. It is a miracle drug, period, for the intense pain. However, I have gained 35 lbs-call it my “prednisone baby” and want to contact the manufacturers so I can name the “baby” after them and to tell them, “You know, when your whipping up a batch of prednisone, just simply leave the “fat-causing elements” OUT. I would gladly pay much more for the drug, as would everyone else I’m sure. Although it works well for the pain, wagging around the extra lbs. leaves me breathless, so I do less. I eat amazing well-never eat out, no processed food, no starch, non-fat dairy. Snack on a couple of shrimp, scallops, tuna or oysters (all plain). Meals are tilapia, salmon, chicken breast with frozen veggies and edamanes. Love how my pred lets me feel-hate the belly, moon face, and lump on the back. Do you suppose if they wanted to specifically make a drug to do that, they could. We all know……they could.
Hi, Sue, Fibromyalgia can be very painful. I’m glad you’ve found some relief with the prednisone. It’s so good that you are eating well, with lots of protein and whole foods. That is wonderful. You might want to talk with your doctor about your breathlessness when moving around. Generally, for many of us with auto-immune disease, a vicious cycle can develop where we move less because we are either in pain or feel literally weighed down. Not moving results in increased pain and reduced cardio-vascular health, which keeps us from moving. Research supports moving for pain reduction, maintaining range of motion and heart/lung health despite our inflammatory illness. I understand why you do less, I just ask that you check in with your healthcare pros to see if there is anything you can do to gently move a little more.
Putting that aside, I assure you that the pharmaceutical industry would love nothing more than to discover a “weightless” prednisone. I am no fan of ‘Big Pharma’ but you are right: you, me and millions of others would pay a lot for that medication. Which is why, if they could, they would. Not only would it make them rich[er], whoever discovered weightless prednisone would win the Nobel Prize!
I was diagnosed with double pneumonia back in August and was hospitalized for two weeks and treated with antibiotics. I went back to my doctor in November still feeling like I had pneumonia so I was prescribed another dose of antibiotics. Fast forward to January 2, 2018 I woke up not feeling well had shortness of breath when the rescue squad got there my oxygen level was 69 I was taken to the hospital rushed into surgery to have a portion of my lung removed and a chest tube put in to drain the fluid. I was put on life support and in ICU on high flow oxygen at 6 liters. When I awoke 6 days later they informed me that the pneumonia I had in August never went away and that it had turned into organizing pneumonia and it had attacked my lungs so they had to remove the part it damaged. I was finally discharged on January 28, 2018 only to be home two days before I started having real bad chest pain so back to the hospital I went to learn that I had a pulmonary embolism they were giving me heparin to prevent blood clots and I was having terrible leg cramps come to find out I was allergic to the heparin and had DVT in my right leg which the clots were breaking off and causing the leg pain. My team of doctors were scared that I would have another pulmonary embolism and my body would not be able to handle it so I was rushed into surgery again to have an IVC filter put in. I have been through hell and back. I was on 240mg of prednisone in the hospital, discharged at 40mg for 3 weeks and then dropped to 20mg which is where I am at now. I have gained 30lbs in one month. I have the moon face, my stomach looks like I am 9 months pregnant and I cannot fit into any of my clothes. I am already depressed enough with everything that has occurred plus being on oxygen 24/7. I need help to loose this weight because I will be on prednisone for at least another month until I see the doctor. I did get my doctor to prescribe a fluid pill to help reduce the fluid retention I am having. I am thankful to be alive however I am so miserable with all this extra weight it makes it harder to breath. I am unable to exercise due to my oxygen levels dropping so quickly with exertion plus a back injury I have from a car accident in 2008.
Amanda, you have been to hell and back, several times in fact. I am so sorry for everything you have gone through. There is a lot going on with your health, weight gain being one. Right now is probably not the time to be thinking of losing weight. From this distance, I am not qualified to give you direct advice. My approach while on prednisone is weight gain control, not weight loss. I hope you have doctors, or just one doctor, physician’s, assistant, nurse practitioner, patient advocate, psychotherapist, any qualified medical professional, who you can talk with, who listens to you, sees you and is willing to be creative about how to help you on all fronts. You need, and deserve, to have that person, someone with boots on the ground next to you with your best interests at heart.